Research
Volunteers Needed for "Examining the Transition" Study
The University of Calgary's, Faculty of Social Work in Edmonton is currently looking for individuals to take part in a study called Examining the Transition from Child to Adult Services for Persons with Autism. They study team is hoping to identify experiences and needs related to the transition from adolescent to adult services and resources for individuals (16-25 years of age) with autism and their families.
Participation in this study involves an interview with the parent(s) and the individual with autism, if possible (can be either together or separate). The interview will take place at a time and place convenient for you. The interview will allow you to share your experiences and ideas about what is beneficial and what changes should be made to improve care for families affected by autism.
Feel free to call or email the study team for more information, or if you're interested in participating in the study. Contact information is included below. The study team is happy to answer any questions you might have about the study. You do not have to participate if you contact us for more information.
Contact Information:
Mathew Milen
(780) 492-0899; 1-877-492-7219
mtmilen@ucalgary.ca
Dr. David Nicholas
Connecting the Dots: Negotiating Care for Young Persons with Autism in Alberta
We want to learn about families' experiences with supports and services in Alberta!
- What have your experiences with the health, education and social service systems been like?
- What have you experiences with informal supports, for example, your family, friends and community, been like?
- How do you manage supports and services over time?
- What supports, services or resources are most and least helpful?
- How can your family experiences be improved?
We will talk with parents and young persons with autism (from diagnosis to age 30) for about 1 hour, at a time and place convenient for you. You do not have to be receiving formalized supports to participate.
We hope you will consider participating in this important study. It is crucial to have input from families to improve care and service delivery.
Please contact us to participate or for more information.
Department of Pediatrics,
University of Alberta &
Department of Social Work,
University of Calgary
Autism Research Centre,
Glenrose Rehabilitation Hospital
& Department of Pediatrics,
University of Alberta
Department of Social Work,
University of Calgary
Contact information:
sandra.hodgetts@ualberta.ca
780-492-7219
1-877-492-7219 (toll-free)
Parents Wanted for a Study on Bullying and ASD
Are you the parent of a child or youth who has been diagnosed with Asperger Syndrome or Autism? Researchers from York University, Dr. Jonathan Weiss and Catherine Cappadocia, are conducting a nation wide study to investigate bullying experiences among children and youth diagnosed with an Autism Spectrum Disorder (ASD). There is currently little research on this topic despite anecdotal evidence that suggests it is a very important issue for children and youth with ASD. This study will identify factors that increase or decrease the likelihood of bullying and investigate the impact of bullying on the mental health of children with ASD.
Please take 30 minutes to complete an important survey about bullying! As a first step towards a better understanding of bullying and victimization among children and youth with ASD, parents can complete this survey online. Parents will be asked to talk about their child’s experiences with bullying, school situation, and diagnosis and symptoms of Asperger syndrome or Autism. Parents will also be asked their own perspective on their child’s health and behaviour and how this makes them feel.
Survey results will be used to support school and community programs for children and youth with ASD. The knowledge gained through this study will contribute to the development of future bullying prevention and intervention programs across Canada. This project was approved by the York University Research Ethics Board.
Thank you in advance for your consideration! As a token of our appreciation, all survey participants will be entered into a draw for $300.
To learn more about the survey or to participate, please click here.
You can also see the other projects we have for families of people with ASD by going to the website www.familyprojects.ca
The Autism Research Centre Needs Your Help!
The Autism Research Centre at the Glenrose Rehabilitation Hospital in Edmonton is always looking for individuals with ASDs and their families to participate in autism research studies. By participating, you will be helping to create a brighter future for individuals with autism.
To see the full-sized poster, please click on the picture below.
Participate in the World's Largest Research Study on Autism Spectrum Disorders
More than 60 researchers from the Autism Spectrum Disorder - Canadian-American Research Consortium (ASD-CARC), headed by Dr. Jeannette Holden from Queen's University in Kingston,Ontario, are hoping to study tens of thousands of families in order to identify the genes and environmental factors that contribute to causing ASDs. Consider participating in this study if your family has someone with an Autism Spectrum Disorder. Researchers are also looking for control families - those families who do not have a family member with an ASD.
For more information please vist www.AutismResearch.com
